Here’s a list of some of our favourite social networking groups. They provide ideas, support and inspiration for raising a visually impaired child.
Playful explorations for a child that is blind
A place where inspiration and ideas can be shared for people who live, work and love children with visual impairment. Created by parent Karen Newell, this group is all about how you can approach play creatively to make for an accessible learning environment for a child who is visually impaired.
Parents of children who have a visual impairment
A group created by the mother of a child with albinism. A way to give back to other parents, and provide an open forum to discuss ideas, resources, and suggestions for how to help make children’s lives as rich as possible.
VI Talk is a registered CIO (charitable incorporated organisation.) Charity number 1165629. VI Talk is aimed at anyone who is visually impaired, knows someone who is or has connections with a charity, organisation or group which offers services and or support to visually impaired people.
A place to share wonderful stories about your children’s achievements with the hope to advise, help, support and inspire other parents. It’s a great group with lots of relevant information when it comes to raising a child who is visually impaired.
Super Seth’s Stories
This page is to raise awareness of Leber’s congenital amaurosis, LCA for short. Written by his mother, follow Seth’s journey with LCA and change your perception of blindness along the way.
The Nystagmus Family Foundation
This is a support group for families of children with Nystagmus and anyone who lives directly or indirectly with the condition. The group exists to offer a friendly ear and words of support when it’s been a wobbly day. This worldwide support network means there is always someone close who understands whatever time of the day or night you have your wobbly moments.
This group’s aim is to talk openly about disability in all shapes and sizes, whether you are a disabled person, or are caring for someone who is.
Cailee’s Corner is a Facebook page that offers online support to families and individuals in the vision impairment community. Social Media has played a huge part in helping young kids feel socially connected. Having a positive self image, self esteem, identifying with peers and having confidence is vital to our kids futures. Cailee’s Corner created a place where it is safe to connect with other kids and families just like them who wear glasses, contacts, who have vision impairments and allows them to find a common thread, a “hey, they look just like me”, moment”.
Leber’s Hereditary Optic Neuropathy (LHON) (BLIND)
LHON is an optic nerve disorder that can suddenly cause loss of central vision. it is a genetic mutation passed down from the mother to all offspring, however not everyone who carries a LHON mutation loses vision. It is a very rare condition, affecting about 1 in 50,000 people.
This is to show your support for children going blind by a rare condition called Leber’s congenital amaurosis. Also this is where parents/ carers anyone who is affected by this can talk with each other and make friends.
Blind and Vision Impaired Social & Support Group
This is a worldwide group, who’s aim is to SUPPORT each other and to STOP the isolation that blindness and low vision can cause.
MAPS MOMS Microphthalmia, Anophthalmia Parent Support
MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce the overwhelming feeling of isolation that is all too common when a diagnosis of microphthalmia or anophthalmia is confirmed.
How George Sees The World
How George Sees the World page was created by his Mummy, who shares stories and updates about her son. “Our fantastic little boy was born blind and has a condition called Leber’s Congenital Amaurosis or LCA. I hope to inspire parents of visually impaired kids.”
Cameron was born with Norrie’s disease. This group is a place to share his journey, and to help raise awareness and change perceptions of blindness.
Navigating Chloe’s World
Created by mother Jane Ring, this page explores the extraordinary life of Chloe, Jane’s deaf-blind daughter. With a view to inspire and celebrate all things Chloe, this page is a great one to follow all of Chloe’s adventures.
The Cerebral Visual Impairment Society
Raising awareness of cerebral visual impairment (CVI) and supporting people affected by it and their families. ‘Changing perceptions of Vision.’