• Date: Wednesday 12 June 2024
  • Time: 7.30pm to 9.30pm
  • Location: Zoom
  • Cost: £5

We are very pleased to be co-delivering this session with Jay Self BM FRCOphth PhD- aka Dr Jay. This session is for parent/carers of children who have a vision impairment, with particular emphasis placed on early diagnosis support, nystagmus, process guidance and jargon busting.

Dr Jay is a Consultant Ophthalmologist and Associate Professor of Paediatric Ophthalmology in Southampton. He sees all types of paediatric eye conditions, from common to rare diseases. He runs super-specialist services for, rare genetic eye conditions, albinism, nystagmus and paediatric cataract. He leads a paediatric eye disease research group and has published widely on squint, paediatric cataract, albinism, nystagmus and retinal disease with a particular focus on translating research into meaningful benefits for patients. He is member of the Royal College of Ophthalmologists Paediatric, Academic and Genomics committees, works as advisor for 5 charities and is national chair of the NIHR paediatric and neuro-ophthalmology clinical study groups.

Here are some examples of concerns that you may have and could help you to decide if this session is right for you and your family:

  • Are you a parent/carer who is feeling uneasy after a vision impairment diagnosis and want some more information on what’s next?
  • Do you feel you leave the hospital after meeting with professionals with more answers than when you arrived?
  • Are you struggling to get some face to face with your designated ophthalmologist?
  • What is the cause of your child’s condition?
  • How does the condition affect my child’s ability to see?
  • Does this condition sometimes run in families?
  • Can anything be done to cure or help this condition? Is any special treatment necessary? What might help? What can I do to help?
  • Is there anything my child mustn’t do (for example, rub their eyes, shake their head, or jump on to a hard surface)?

This is a Q&A session, where we are asking families to pre-submit questions for Dr Jay. This time of uncertainty can be a difficult for parents and carers, so we wanted to create a session that could help to put your mind at rest.

The first part of the workshop will be dedicated to pre-submitted questions that can be added at point of application, the remainder of the session will be opened up to discussion where you can ask for further information.

Sorry, this workshop is now closed.