EYE CONDITIONS
Finding out that your child is visually impaired can be a frightening and lonely time.
Learning more about your child’s specific condition can help you know what to expect and prepare you better to cope with it. We are pleased to partner with ABDO and RNIB in order to share their knowledge. Both websites have lists of a range of eye conditions to give you more information and advice:
Finding out that your child is visually impaired can be a frightening and lonely time.
Learning more about your child’s specific condition can help you know what to expect and prepare you better to cope with it. We are pleased to partner with ABDO and RNIB in order to share their knowledge. Both websites have lists of a range of eye conditions to give you more information and advice:
Eye condition specific organisations
Albinism Fellowship
Tel: 01282 771900
Email: support@albinism.org.uk
www.albinism.org.uk
Alstrom Syndrome UK
Tel: 07517 278 946
Email: info@alstrom.org.uk
www.alstrom.org.uk
Aniridia Network UK
Tel: 07792 867 949
Email: info@aniridia.org.uk
www.aniridia.org.uk
Bardet-Biedl Syndrome UK
Tel: 07591 206680
Email: info@bbsuk.org.uk
www.bbsuk.org.uk
Birdshot Uveitis Society (BUS)
Email: info@birdshot.org.uk
birdshot.org.uk
Charles Bonnet Syndrome
Email: esmesumbrella@gmail.com
www.charlesbonnetsyndrome.uk
CHECT (Childhood Eye Cancer Trust)
Email: info@chect.org.uk
chect.org.uk
Coates’ Disease – Violet’s Glow
CVI Society
Diabetic Retinopathy
Tel: 0345 123 2399
Email: helpline@diabetes.org.uk
www.diabetes.org.uk
International Glaucoma Association
Tel: 01233 648 170
Email: info@iga.org.uk
www.glaucoma-association.com
Keratoconus Group
Email: anne@keratoconus-group.org.uk
www.keratoconus-group.org.uk
Lebers Hereditary Optic Neuropathy
Macular Society
Tel: 0300 3030 111
Email: help@macularsociety.org
www.macularsociety.org
Microphthalmia, Anophthalmia and Coloboma Support
Tel: 0800 169 8088 & 0800 644 6017
Email: enquiries@macs.org.uk
www.macs.org.uk
National Artificial Eye Service
Tel: 01253 951131
Email: naes.naesinfo@nhs.net
www.naes.nhs.uk
Nystagmus Network
Tel: 01427 718 093
Email: info@nystagmusnet.org
www.nystagmusnetwork.org
Retina UK
Tel: 0300 111 4000
Email: info@RetinaUK.org.uk
www.retinauk.org.uk
Stargardt’s Connected
Email: stargardts183@gmail.com
www.stargardtsconnected.org.uk
Stickler Syndrome UK
Tel: 01903 785771
Email: info@stickler.org.uk
stickler.org.uk
Usher Syndrome
Email:info@usherkidsuk.com
www.usherkidsuk.com
Uveitis
Tel: 0845 075 8114
Email: info@oliviasvision.org
www.oliviasvision.org
Wolfram Syndrome
Tel: 01903 211358
Email: admin@wolframsyndrome.co.uk
www.wolframsyndrome.co.uk
Add your details
If your organisation is not yet included on our list please get in touch at online@victa.org.uk and we will be happy to add you to our resources.
Related Stories…
August marked Children’s Eye Health and Safety Month (as well as it almost being time to go back to school!) and…
By Charlotte Mellor Scarlett is five years old and in her very short life she has had a hell of…
By Cecily Morrison If a child is born without eyes (anopthalmic), then socket expansion is recommended. An expander is put…