EYE CONDITIONS

Eye conditions
eye conditions
Eye condition

Finding out that your child is visually impaired can be a frightening and lonely time.

Learning more about your child’s specific condition can help you know what to expect and prepare you better to cope with it. We are pleased to partner with ABDO and RNIB in order to share their knowledge. Both websites have lists of a range of eye conditions to give you more information and advice:

Finding out that your child is visually impaired can be a frightening and lonely time.

Learning more about your child’s specific condition can help you know what to expect and prepare you better to cope with it. We are pleased to partner with ABDO and RNIB in order to share their knowledge. Both websites have lists of a range of eye conditions to give you more information and advice:

Eye condition specific organisations

Albinism Fellowship

Tel: 01282 771900
Email: support@albinism.org.uk
www.albinism.org.uk


Alstrom Syndrome UK

Tel: 07517 278 946
Email: info@alstrom.org.uk
www.alstrom.org.uk


Aniridia Network UK

Tel: 07792 867 949
Email: info@aniridia.org.uk
www.aniridia.org.uk


Bardet-Biedl Syndrome UK

Tel: 07591 206680
Email: info@bbsuk.org.uk
www.bbsuk.org.uk


Birdshot Uveitis Society (BUS)

Email: info@birdshot.org.uk
birdshot.org.uk


Charles Bonnet Syndrome

Email: esmesumbrella@gmail.com
www.charlesbonnetsyndrome.uk


CHECT (Childhood Eye Cancer Trust)

Email: info@chect.org.uk
chect.org.uk


Coates’ Disease – Violet’s Glow

Violet’s Glow Facebook Page


CVI Society

cvisociety.org.uk


Diabetic Retinopathy

Tel: 0345 123 2399
Email: helpline@diabetes.org.uk
www.diabetes.org.uk


International Glaucoma Association

Tel: 01233 648 170
Email: info@iga.org.uk
www.glaucoma-association.com


Keratoconus Group

Email: anne@keratoconus-group.org.uk
www.keratoconus-group.org.uk


Lebers Hereditary Optic Neuropathy

www.lhonsociety.org


Macular Society

Tel: 0300 3030 111
Email: help@macularsociety.org
www.macularsociety.org


Microphthalmia, Anophthalmia and Coloboma Support

Tel: 0800 169 8088 & 0800 644 6017
Email: enquiries@macs.org.uk
www.macs.org.uk


National Artificial Eye Service

Tel: 01253 951131
Email: naes.naesinfo@nhs.net
www.naes.nhs.uk


Nystagmus Network

Tel: 01427 718 093
Email: info@nystagmusnet.org
www.nystagmusnetwork.org


Retina UK

Tel: (+44) 01280 821334
Email: info@RetinaUK.org.uk
www.retinauk.org.uk


Stargardt’s Connected

Email: stargardts183@gmail.com
www.stargardtsconnected.org.uk


Stickler Syndrome UK

Tel: 01903 785771
Email: info@stickler.org.uk
stickler.org.uk


Usher Syndrome

Email:info@usherkidsuk.com
www.usherkidsuk.com


Uveitis

Tel: 0845 075 8114
Email: info@oliviasvision.org
www.oliviasvision.org


Wolfram Syndrome

Tel: 01903 211358
Email: admin@wolframsyndrome.co.uk
www.wolframsyndrome.co.uk

Add your details

If your organisation is not yet included on our list please get in touch at online@victa.org.uk and we will be happy to add you to our resources.

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